The 'Benchmarking the Patient Movement 2018' study finds the patient movement of 2018 to have far more impact on society than it did when the first 'Benchmarking' study was carried out in 2012. However, 2018's patient movement remains fragmented, overly competitive, and its component patient groups continue to lack confidence about their role in national healthcare systems.
- The views of 1,016 patient groups from 84 countries.
- Drawn from an April 2018-July 2018 survey.
The results of the 2018 'Benchmarking' study is divided into two reports, Part I and Part II. Both parts analyse patient-group capabilities (2018 results are also compared with those of the 2014 and 2012 'Benchmarking' studies).
Part I of the 'Benchmarking' report provides:
- The complete set of data for the 65 questions that help define the 8 indicators of patient-group capability, and overall performance for patient groups comprising each of the 21 countries/regions studied.
- Rankings are supplied for each of the 65 questions, so that patient groups in each of the 21 countries/geographic areas can be compared with one another for capability as patient groups.
- Purchasers of Part II are also supplied with an accompanying full explanation of the methodology, including why each indicator was selected, as well as the overall results for each of the 65 questions for 2018, 2014, and 2012.
Part II of the 2018 'Benchmarking' report compares the strengths and weaknesses of patient groups from the following 21 countries/regions of the world:
Africa [new for 2018] (23 respondent patient groups) - Asia [new for 2018] (69) - Australasia (27) - Belgium [new for 2018] (40) - Central and South America (75) - Canada (29) - Cyprus/Greece [new for 2018] (16) - Eastern Europe (69) - France (65) - German-speaking countries [new for 2018] (134) - Germany (93) - Ireland [new for 2018] (21) - Italy (74) - Netherlands (36) - Nordic countries (40) - Portugal [new for 2018] (30) - Russia [new for 2018] (16) - Spain (100) - Switzerland [new for 2018] (25) - UK (80) - and USA (94)
Both Parts of the 2018 'Benchmarking' report are available separately, or together.
2. Summary of Findings
3. Responses for the 8 indicators
Indicator 1: Business Acumen
Indicator 2: E-communication
Indicator 3: Services to Patients
Indicator 4: Networking: Healthcare Stakeholders
Indicator 5: Networking with Peers
Indicator 6: Reputation
Indicator 7: Impact on Health Policy
Indicator 8: Resilience
4. Welcome to the Grid
5. Profile of Respondent Patient Groups
Part II of the results of the 2018 'Benchmarking' study analysed to highlight the capabilities and weaknesses of patient groups from 21 countries/geographic areas of the world.
Why this 'Benchmarking' study?
Despite the obvious importance of patient groups, no real mechanism exists to measure the patient movement's impact upon healthcare - besides the rather arbitrary measures of the numbers of patient groups, or patient groups’ own accounts of their successes or failures.
In 2012, the analyst set out to fill such a void in measurement by developing a benchmarking tool to assess the impact of patient groups in their fields of activity, and their significance in healthcare systems. The 2018 iteration of the 'Benchmarking' study is the third time the exercise has been conducted (the previous studies were completed in 2012 and 2014).