Better Living With Dementia: Implications for Individuals, Families, Communities, and Societies highlights evidence-based best practices for improving the lives of patients with dementia. It presents the local and global challenges of these patients, also coupling foundational knowledge with specific strategies to overcome these challenges. The book examines the trajectory of the disease, offers stage-appropriate practices and strategies to improve quality of life, provides theoretical and practical frameworks that inform on ways to support and care for individuals living with dementia, includes evidence-based recommendations for research, and details global examples of care approaches that work.
- Offers evidence-based strategies for making life better for dementia patients at home, in the community, and in health care and service settings
- Provides an overview of the disease pathology, current diagnostic criteria, and the stages and trajectory of the illness
- Includes intervention strategies to support formal caregivers
- Looks at the role of environmental design and technology in dementia care
Part 1: About the Person 1. How the Brain is Affected 2. Lived Experiences of Individuals with Dementia 3. Breaking the Cycle of Despair 4. Making Life Better for Individuals Living with Dementia
Part II: About Caregivers 5. Family Member as Care Partner 6. How We Can Support Families 7. Formal caregivers: Role of the Inter-professional Team
Part III: About Home and Community Environments 8. The Physical Home Environment
A Neglected Therapeutic Context 9. Living in the community
Part IV: About Social Systems and Policy 10. Settings and Services of Care 11. Global Efforts and National Plans 12. Transforming Dementia care
Part V: Taking Action 13. Developing and Implementing an Action Plan 14. Putting It All Together
Laura N. Gitlin, PhD, is an applied research sociologist. At the time of writing this book, she was the Isabel Hampton Robb Distinguished Professor in the Department of Community Public Health in the School of Nursing with joint appointments in the Department of Psychiatry and Division of Geriatrics and Gerontology, School of Medicine, at Johns Hopkins University. She was also the founding director of the Center for Innovative Care in Aging at Johns Hopkins University School of Nursing. As of February 1, 2018, Dr. Gitlin became the Distinguished University Professor and Dean of the College of Nursing and Health Professions, of Drexel University. Also, as of October 2017, she is the Chair of the Advisory Council on Alzheimer's Research, Care and Services which advises the Secretary of the Department of Health and Human Services (HSS) on federal programs affecting people with Alzheimer's disease and related dementia and continue development and progress on the National Plan to address dementia by HHS, Veterans Affairs, the Department of Defense, and the National Science Foundation. She is also a member of Medical Scientific Advisory Board of the US National Alzheimer's Association
Nancy Hodgson's program of research emphasizes the examination of factors associated with quality of life in chronically ill older adults and the enhancement of science-based nursing practice with older adults at end of life. Her studies include an NIH-funded career development award investigating the efficacy of palliative, sensory-based interventions designed to ease neuroendocrine distress, and an American Cancer Society-funded study comparing the effectiveness of complementary therapy interventions in nursing home residents with cancer.