Adherence and Self-Management in Pediatric Populations addresses the contemporary theories, evidence-based assessments, and intervention approaches for common pediatric chronic illnesses. An introductory chapter summarizes the state of the field and provides a general foundation in adherence and self-management. Subsequent chapters focus on specific diseases, ensuring that the scope of knowledge contained therein is current and thorough, especially as the assessments and interventions can be specific to each disease. Case examples are included within each chapter to illustrate the application of these approaches. The book ends with an emerging areas chapter to illuminate the future of adherence science and clinical work.
This book will be extremely helpful to professionals beginning to treat youth with suboptimal adherence or for those who conduct adherence research. Experts in the field will benefit from the synthesized literature to aid in clinical decision-making and advancing adherence science.
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1. Introduction Kimberly Driscoll and Avani C. Modi 2. Pediatric Asthma Sara E. Voorhees, Casey Lawless, Dima Ezmigna, and David A. Fedele 3. Pediatric Type 1 Diabetes Holly K. O'Donnell and Kimberly A. Driscoll 4. Childhood Obesity Jennifer L. Warnick, Stefania Pinto, Ke Ding, and David M. Janicke 5. Cystic Fibrosis Alexandra L. Quittner and Ana Maria Li-Rosi 6. Chronic Pain Delana M. Parker, Lauren E. Harrison, and Laura E. Simons 7. Pediatric Oncology Ahna L.H. Pai, Meghan E. McGrady, and Lauren Szulczewski 8. Pediatric Sickle Cell Disease Katherine M. Kidwell, Marsha J. Treadwell, and Lori E. Crosby 9. Pediatric Epilepsy Aimee W. Smith, Ana M. Gutierrez-Colina, Shanna M. Guilfoyle, and Avani C. Modi 10. Spina Bifida Alexa Stern, Sandra Amaral, Colleen F. Bechtel Driscoll, Alexandra M. Psihogios, Colleen Stiles-Shields, Kathy Zebracki, and Grayson N. Holmbeck 11. Inflammatory Bowel Disease and Gastrointestinal Disorders Jill M. Plevinsky and Rachel N. Greenley 12. HIV/AIDS Sylvie Naar, Karen MacDonell, and Salome Nicole Cockern 13. Solid Organ Transplant Emily M. Fredericks, Erin G. Clifton, and Melissa K. Cousino 14. Rheumatic Diseases Leslie A. Favier, Onengiya Harry, and Kristin Loiselle Rich 15. Dermatologic conditions Kayla H. Felix, Abigail Cline, Gregory Bartos, and Steven R. Feldman 16. Pediatric Sleep Alexa J. Watach, Melissa S. Xanthopoulos, Olufunke Afolabi-Brown, Bruno Saconi, and Amy M. Sawyer 17. Emerging Areas Avani C. Modi, Ana M. Gutierrez-Colina, and Kimberly A. Driscoll
Avani C. Modi, Ph.D., is a clinical psychologist and experienced researcher in pediatric adherence with an international reputation in pediatric epilepsy. Dr. Modi is a Professor of Pediatrics at Cincinnati Children's Hospital Medical Center and the University of Cincinnati College of Medicine. She serves as the Director for the Center for Treatment Adherence and Self-Management and the Co-Director of the New Onset Seizure Disorder Clinic at Cincinnati Children's Hospital Medical Center (CCHMC). Her research focuses on the development and evaluation of interventions to improve adherence in youth with chronic conditions, as well as clinical implementation of adherence measurement and intervention. Dr. Modi has over 120 peer-reviewed publications and serves on several national and international committees.
Kimberly A. Driscoll Associate Professor of Clinical and Health Psychology, Director of Behavioral Science Research, Diabetes Institute, University of Florida, Gainesville, FL, United States.
Kimberly A. Driscoll, Ph.D., is a clinical psychologist and experienced researcher in adherence and type 1 diabetes whose clinical care and research focuses on improving the psychological well-being of people with type 1 diabetes and their parents and improving adherence to medical treatment regimens, with a focus on using technology to optimize adherence and health outcomes. Her specific interests include improving insulin pump adherence, reducing fear of hypoglycemia and parent-child conflict, and integrating psychological interventions into type 1 diabetes medical appointments. She has received extramural grant funding from the National Institutes of Health (e.g., K23, R03, DP3, R01) and the American Diabetes Association. She also serves as a collaborator on grants with colleagues from leading type 1 diabetes centers. Dr. Driscoll has more than 60 peer-reviewed publications. She is currently an Associate Professor of Clinical and Health Psychology at the University of Florida and the Director of Behavioral Science Research at the University of Florida Diabetes Institute. She also holds an academic appointment at the University of Colorado Anschutz Medical Campus in the Barbara Davis Center for Diabetes.