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The Corporate Reputation of Pharma in 2019 - The Patient Perspective - HIV/AIDS Edition - The Views of 141 HIV/AIDS Groups

  • ID: 5129260
  • Report
  • June 2020
  • Region: Global
  • 33 Pages
  • PatientView
What 141 HIV/AIDS Patient Groups Think of 9 Pharma Companies in 2019

FEATURED COMPANIES

  • AbbVie
  • Bristol Myers Squibb
  • Gilead Sciences
  • GSK
  • Janssen
  • Merck & Co/MSD

This is the 7th edition of 'The Corporate Reputation of Pharma - from the Perspective of HIV/AIDS Patient Groups'. The 2019 results are drawn from a survey of HIV/AIDS patient groups, conducted November 2019 - February 2020.

About the 2019 survey of HIV/AIDS patient groups

  • 2019’s 141  respondent HIV/AIDS patient groups came from 39 countries.
  • The 141 HIV/AIDS patient groups had the following geographic remits: 9% an international remit; 45% a national remit; 27% regional (an area within one country); and 18% local.

On HIV/AIDS patient-group relationships with pharma

  • 82% of the 141 HIV/AIDS patient groups responding to the 2019 survey worked with at least one pharma company.

What this Report Contains

Industry-wide analyses: The report examines the issues of importance to HIV/AIDS patient groups, including: levels of industry innovation; access to treatments; transparency of the industry; and drug pricing. Analyses are reinforced by extensive feedback from 2019’s respondent HIV/AIDS patient groups [found in Appendix I], organised according to the country headquarters of the respondent patient groups.

Individual company analyses: The 9 pharma companies are reviewed by 2019’s 141 respondent HIV/AIDS patient groups for overall corporate reputation, and for performance at 12 individual indicators of corporate reputation.

Key Industry-Wide Findings

In 2019, HIV/AIDS patient groups took a more negative view of the corporate reputation of the pharmaceutical industry, compared with patient organisations of other specialties. Some 39% of 2019’s 141 respondent HIV/AIDS patient groups thought that the pharma industry had an “Excellent” or “Good” corporate reputation, ranking pharma 3rd out of nine healthcare sectors. The equivalent figure reported by patient groups worldwide was 46% - ranking pharma 1st. HIV/AIDS patient groups nominated generic drug manufacturers as 1st in 2019, with 49% of the HIV/AIDS patient groups describing that sector's corporate reputation as “Excellent” or “Good”. These results probably reflect the ongoing concerns that HIV/AIDS advocacy groups have with the pricing arrangements of prophylactic drugs (for the prevention of HIV transmission, and the treatment of HIV/AIDS). Advocates argue that the unnecessary maintenance of high prices has led to profound health inequalities.

The Thailand-based Asia Pacific Council of AIDS Service Organizations (APCASO) defines how pharmaceutical companies could improve, and be more patient centric

“Shift the approach by treating anyone desperate to return to health as people, and not patients. If they can do that, and come down to the ground to understand the real value of the drugs they manufacture on the lives and livelihood of people, they will be more likely to connect with the individuals through whom they will likely make a profit. Building a business model that protects the beneficiaries of your products is not a difficult one to see and make with a person-centred approach.”

On the quality of pharma products: The majority of HIV/AIDS patient groups responding to the 2019 ‘Corporate-Reputation’ survey clearly believed that the pharmaceutical industry is adept at making products of benefit to patients. As many as 66% of 2019’s 141 respondent HIV/AIDS patient groups stated that the pharma industry was “Excellent” or “Good” at this activity. The equivalent figure for 2018’s HIV/AIDS respondents was 57%. In July 2019, renewed efforts to develop a HIV vaccine were announced at the 10th International AIDS Society Conference on HIV Science.

On drug pricing: The 2019 survey found the main areas of discord between HIV/AIDS patient groups and pharma to be drug pricing and access to medicines. As in previous years (and in common with patient groups of other therapy areas), the vast majority of 2019’s respondent HIV/AIDS patient groups rated the industry low for transparency in pricing, and low for having fair pricing policies - with just a minority (12%) calling the industry “Excellent” or “Good” at either. The resentment is tangible; one local US-based HIV/AIDS group noted: “Predatory pricing is rampant in the industry. Often, it’s insidious - taking annual incremental price increases on long-approved drugs, increasing the overall cost of healthcare.”

Just 30% of 2019’s 141 respondent HIV/AIDS patient groups stated that the industry was “Excellent” or “Good” at ensuring access to medicines. Although the figure is low, most patient groups from other therapy areas ranked the pharma industry lower still for this measure.

Key Company Findings

ViiV Healthcare was ranked overall 1st out of 9 companies in 2019 by the 118 respondent HIV/AIDS patient groups familiar with the company. ViiV Healthcare has headed the HIV/AIDS league table since 2013 when PatientView first undertook an HIV/AIDS analysis. ViiV Healthcare was also ranked 1st in 2019 for 11 of the 12 indicators of corporate reputation. The exception was the provision of high-quality products of benefit to patients, for which Gilead was ranked 1st.
Gilead Sciences was ranked overall 2nd in 2019 by the 128 respondent HIV/AIDS patient groups that claimed familiarity with the company.
Janssen was ranked overall 3rd in 2019 by the 99 respondent HIV/AIDS patient groups claiming familiarity with it. Janssen was one of the companies that announced progress in the development of an HIV/AIDS vaccine in 2019.

A note about COVID-19 and this study’s results

Covid-19 should have a relatively limited impact on many of the results of the 2019 ‘Corporate-Reputation’ study, because the survey took place (November 2019 to late-February 2020) largely before the crisis became global. However, announcements about Covid-19 by some pharma companies during January and February 2020, may have influenced the views of patient groups responding to the ‘Corporate-Reputation’ survey during its last two months.

Note: Product cover images may vary from those shown

FEATURED COMPANIES

  • AbbVie
  • Bristol Myers Squibb
  • Gilead Sciences
  • GSK
  • Janssen
  • Merck & Co/MSD

1 Executive summary
8 HIV/AIDS patient-group relationships with pharma, 2019
11 Industry-wide findings, 2019
16 Rankings of 9 pharma companies, 2019 (v. 2018) among HIV/AIDS patient groups familiar with the companies
24 Rankings of 7 pharma companies, 2019 (v. 2018) among HIV/AIDS patient groups that work with the companies
32 Profiles of the 9 companies, 2019 (v. 2018)
 
Appendices
I What HIV/AIDS patient groups say on pharma(and how the industry can improve), 2019/2020
II Profiles of respondent HIV/AIDS patient groups, 2019

Tables and Charts
2 With how many pharma companies did the respondent HIV/AIDS patient groups work, 2019?
4 Percentage of respondent patient groups stating that the pharmaceutical industry was “Excellent” or “Good” at ensuring patient access to medicine, 2019 - by therapy area
7 Percentage of respondent HIV/AIDS patient groups stating “None” or “They did not know” any company that was “Best” at an activity, 2019
9 HIV/AIDS patient groups: familiarity, and partnerships, with pharma companies, 2019.
10 The types of working relationships that respondent HIV/AIDS patient groups have with pharma companies, 2019
12 The corporate reputation of the pharmaceutical industry, 2019 v. 2018 - compared with that of 8 other healthcare sectors (according to respondent HIV/AIDS patient groups)
12 The corporate reputation of the pharmaceutical industry, 2013-2019 (according to respondent HIV/AIDS patient groups)
13 The perceived effectiveness of the pharmaceutical industry at carrying out specific activities, 2019 v. 2018(according to respondent HIV/AIDS patient groups)
14 Perceptions of the efficacy of the pharmaceutical industry at various activities of importance to patient groups, 2013-2019 (according to respondent HIV/AIDS patient groups)
16 Rankings of 9 individual pharma companies, 2019 v. 2018 (according to respondent HIV/AIDS patient groups familiar with the company)
24  Rankings of 7 individual pharma companies, 2019 v. 2018 (according to respondent HIV/AIDS patient groups that work or partner with the company)

Profiles of the 9 companies, 2019 v. 2018, charts and tables

  • Number of respondent HIV/AIDS patient groups claiming familiarity with the company, 2019.
  • Number of respondent HIV/AIDS patient groups saying that they had a working relationship with the company, 2019.
  • Profile of respondent HIV/AIDS patient groups familiar with the company, 2019: country headquarters; geographic remit; and types of relationships.
  • Company scores among respondent HIV/AIDS patient groups familiar with the company, and which work with the company, for each of the 12 indicators of corporate reputation, 2019.
  • Percentage of the respondent HIV/AIDS patient groups that work with the company, but which also work with other companies, 2019.
  • Overall rankings for the company according to respondent HIV/AIDS patient groups familiar with the company, 2019 v. 2018.
  • Overall rankings for the company according to respondent HIV/AIDS patient groups that work with the company, 2019 v. 2018.
  • Company rankings for each of the 12 indicators according to respondent HIV/AIDS patient groups familiar, or working, with the company, 2019 v. 2018.
  • Snapshot view: where the company sits in the corporate tiers for each of the 12 indicators (in the higher, the middle, or the lower tier), as assessed by respondent HIV/AIDS patient groups familiar with the company, 2019.
  • Snapshot view: where the company sits in the corporate tiers for each of the 12 indicators (in the higher, the middle, or the lower tier), as assessed by respondent HIV/AIDS patient groups that work with the company, 2019.
  • The company’s Patient Corporate Reputation Indexes (PCRIs), 2015-2019 - selected indicators.
Note: Product cover images may vary from those shown

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  • AbbVie
  • Bristol Myers Squibb
  • Gilead Sciences
  • GSK
  • Janssen
  • Merck & Co/MSD
  • Roche/Genentech
  • Teva
  • ViiV Healthcare
Note: Product cover images may vary from those shown
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